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South West End of Life Conference

Your plan or mine – who is leading my care?

On Wednesday 6 July, South West Integrated Personal Commissioning (IPC) Programme, in conjunction with NHS England, held an End of Life Conference bringing together more than 130 health and care leads to discuss their commitment to end of life care.  Health Education England has helped to fund 25 end of life care projects through 2014-2016 and supported the Right Skills Steering Group, linked to the IPC programme, to deliver three elements of work:

  1. Career paths
  2. Culture and behaviour change
  3. Expertise Time Bank






Dr Susanna Hill, GP Facilitator along with six colleagues in Devon, Macmillan GP Advisor for Devon and Cornwall and Generalist Clinical Lead for the South West End of Life Network, opened and chaired the event “A wonderful chance to share a whole day with people who have the same passion for delivering End of Life care that focuses on what patients want not what healthcare thinks they need!”

Gina King, Quality Improvement Lead for the South West Strategic Clinical Network (SWSCN) and organiser of the event said “I was delighted to see many delegates and who were all inspired by the variety of speakers, stands and posters.  The day was a great success and a tribute to the legacy of good practice in EoLC in the South West”.

The key speakers at the event were:

  • Claire Briggs, Parent / carer, who gave a moving talk about her story
  • Frances Tippett, Programme Lead for Integrated Personal Commissioning, presented ‘Personalising the person within Integrated Personal Commissioning’
  • Simon Chapman, Director of Policy and External Affairs at the National Council for Palliative Care discussed ‘Relationship revolution’ – The umbrella charity for palliative and end of life care
  • Gina King, Quality Improvement Lead for South West Strategic Clinical Network, presented ‘Why did we become a compassionate organisation?’ on behalf of Somerset CCG
  • Helen Meehan, Lead Nurse Palliative Care/End of Life and Rachel Davis, Clinical Nurse Specialist Palliative Care at Royal United Hospitals Bath NHS Foundation Trust talked about ‘How do we know are we making the change?’ (Funded by Health Education England)
  • Matthew Boulter, GP and Clinical Lead from Cornwall CCG their journey and challenges in Cornwall by “Living Well” in Cornwall and beyond
  • Dr Tricia Woodhead, Health Foundation Quality Improvement Fellow at the Academic Health Science Network, presented methods to enable the question ‘How do we know we are making a change?’
  • Professor Bee Wee, National Clinical Director for NHS England, was presented via a video link and discussed ‘The virtual last word’

Along with presentations from various speakers throughout the day, there was a chance for delegates to view a range of stands, which include information on:

  • Circle of Life board game – designed as a training resource by Gina King and Maggie Martin to support learning and consolidation of knowledge in end of life education
  • Expertise Time Bank – which offers free training and support from internal and external providers to all those working on the South West IPC
  • Plymouth People First – a self-advocacy organisation for adults with learning disabilities
  • Public Health and Palliative Care International – developing compassionate communities
  • Marie Curie
  • National End of Life Care Intelligence Network (NEoLCIN) – who aim to improve the collection and analysis of information related to quality, volume and costs of care provided by the NHS, social services and the third sector to adults approaching the end of life
  • Sirona – who showcased the comments and responses of patients and carers on care delivered at end of life by Sirona community nurses in 2015-16
  • St Luke’s Hospice – who presented a range of projects they have undertaken at their hospice in Plymouth with regards to the development of their education and training programme.

Susanna Hill added “From Claire’s moving story of the care her son, Jaspar received, putting people in the driving seat with Integrated Personal Commissioning, the challenge about ‘are we commissioning or procuring?’, can your community change to look after you?  Making conversations about End of Life wishes part of the ‘Culture of an organisation’, being challenged to ‘know what is around you.

Ensuring that you ‘know that what you are doing is making an improvement’- the day moved quickly across a range of topics that struck a chord with the delegates and the buzz of conversation and discussion grew through the day”.


There was also an opportunity for delegates to attend two workshops to learn more about:

  • How to become a compassionate community – run by Julian Abel, Palliative Medicine Consultant
  • Opening the Spiritual Gate – run by Dr Liz Toy, Consultant Clinical Oncologist at the Royal Devon and Exeter hospital and Keith Mitchell
  • Talking Mats – run by Ray Heal, Advocate and training facilitator in the use of “Talking Mats”, Juliet Ferris, Person Led Care and Support Workstream Lead, and Corine Koppenol-Lyndon, Lead Nurse for Children with Complex Needs for the IPC programme
  • The How to Guide: Commissioning a person led approach – run by Sarah Day, Financial Lead

All the presentations from the day are available on the South West Strategic Clinical Network website, along with copies of the monthly SWSCN EoL bulletins.  To view the tweets from the day, please click on this link.

On Tuesday 26 July, there will be a Compassionate Community Practitioner’s Network event at Taunton Racecourse.  To attend and hear more about what you can do in your area, please book a place here.  For more information on the event, please contact Julian Abel.



This Page was last updated on: 22 July 2016

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